Invited Presentation ABNA - Biobanking: Shaping the Future Together

Interoperable Biobanking Networks: Enabling Citizen Science and Decentralized Research through Aminochain (#22)

Jelani Clarke 1
  1. AminoChain, TBA, Canada

The rise of citizen science in biomedicine is transforming how research is conducted, with individuals and communities playing increasingly active roles. To fully harness the potential of these contributions, there is a need for a decentralized and interoperable infrastructure that can link independent research platforms, ensuring transparency, scalability, and secure data exchange. Aminochain provides this critical infrastructure, enabling a new era of decentralized biobanking that seamlessly connects citizen scientists with institutional networks.

Through its innovative approach, Aminochain allows diverse research platforms to integrate into a unified biobanking ecosystem, empowering individuals to contribute to and participate in research on their own terms. Key to this vision is Demonstrated Consent, a framework that enables participants to maintain control over their samples and data, ensuring that their contributions are transparent, traceable, and ethically utilized. By using decentralized ledger technology, Aminochain fosters trust between researchers and citizen scientists, making biomedical research more inclusive and equitable.

This presentation will highlight how Aminochain’s decentralized network facilitates interoperability between independent research platforms, allowing them to access biobank resources, engage in secure data sharing, and reduce operational costs. By breaking down silos, Aminochain accelerates scientific discovery, enhances collaboration, and ensures that the contributions of citizen scientists are not only preserved but amplified.

We will explore real-world applications of Aminochain’s platform, showcasing how decentralized biobanking can drive innovation in fields ranging from precision medicine to aging and hairloss research. By empowering individuals to directly engage in the scientific process while maintaining ownership of their data, Aminochain supports a more dynamic and participatory research ecosystem.

This session is essential for biobank managers, decentralized science (DeSci) advocates, researchers, and citizen scientists seeking to explore how interoperable networks can redefine the future of biomedical research